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“Running” for Taylor in 50 States: North Dakota

When I crossed the finish line of Charlotte’s Thunder Road Half Marathon blindfolded in November 2013, I knew the race would be a tough act to follow. But I didn’t intend to stop running for my sister,...

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National Running Day 2015: Looking Back, and Ahead

Today is National Running Day, a “coast-to-coast celebration of running.” On this day last June, I put on a blindfold and ran an unofficial 5K to honor my sister, Taylor. I cherish my vision; blindness...

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Running for Taylor in 50 States: Sprinting for Hawaii

Thanks to The Garden Island newspaper for helping us spread the word about Batten disease in advance of my next race – the Kauai Half Marathon! Kauai’s only daily newspaper published our story in...

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